A Data Request Portal (DRP) should be an integral component of every registry sustainability and monetization strategy; but leveraging a DRP requires more than simply posting a note in the town square about your datasets. Consumers of registry data require detailed descriptions of both your data and its metadata, and assurances that your data is of sufficient quality for their intended purposes.
 

In Part 2 of this two part series, our clinical data registry experts summarize how to properly evaluate and describe your data for use in a DRP, what it looks like to use a DRP, and how to measure the impact and productivity of the data you make available.


Familiarity with the topics covered in our first DRP webinar is suggested but not required.

What You'll Learn

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How to properly evaluate and describe your data for use in a DRP.

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How technology can make the data request and fulfillment process easier and less burdensome.

PR_blue_circle_bullet_flame_iconHow to measure the impact and productivity of the data you make available.

 

Original Presentation Date: April 27, 2016
Length: 30 minutes

View this webinar

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Key Information

Clinical Data Registries are critical assets for medical specialty societies, but are often viewed as prohibitively expensive programs to maintain. One underutilized revenue model is the Data Request Portal (DRP)—a tool for facilitating the exploration and sharing of valuable datasets. But a DRP is only as useful as the quality of the data it supports. An effective DRP framework establishes trust in the data and measures the combined productivity of your shared assets.

About the Speakers

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David Voccola, Partner & Clinical Informatics Specialist

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Frank Farach, PhD, Director of Program Management

Great webinar—this provides us with some concrete examples of how a DRP should look.

"Very well thought out material, and a lot of useful resources for us to follow up on."


"GThe presenters were clear and knowledgeable. I'll be sharing this with my team."