Partnership delivers a data hub supporting the International SCN2A Clinical Research Collaborative
RogCon sought to enhance their current data resources to be able to pursue the types of research activities that would accelerate therapeutic development in epilepsy patients. This included a robust natural history study led by a handful of the world’s leading neurologists and epileptologists that could provide a historical understanding of the natural progression of SCN2A disease.
This study would need to be able to compile and deliver high-quality analytic datasets and cohort discovery options to the clinical research community. This study would not only require the collaborative efforts of multiple international teams; It’s underlying data infrastructure would need to scale rapidly in both size and scope, without becoming too difficult to use or too expensive to maintain.
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